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SnoKat
As far as my health issues have been going, I am still being surprised. Nice, isn’t it, surprises? You’d think I’d become more prepared for unpredictable by now. But I’ve always felt like such an average, regular person that I keep expect everything to be rather ho-hum and text-book and it’s just not turning out that way.

I had a doctor appointment today with my internist. This was the first time I’d actually talked to him while not half out of my gourd on drugs! I like him though. He seems very careful and thorough. So I go in expecting to hear “Yep, it’s Crohns Disease and you need to take this medicine for a while and if you have problem do this. See you in year!” Silly me.

It seems that my assumed “mild” Crohns is actually severe and serious. I am looking at years of treatment in order to avoid surgery. Steroids for a while, another anti-inflammatory for possibly five years, AND another treatment that sounds a bit like chemo (taken in the hospital intravenously at different intervals for as long as a year, with possible harsh side effects…and oh yeah, expensive!!). I asked the doctor again, “It’s THAT serious?” “It is THAT serious.” He said he didn’t proscribe that drug lightly.

Well, crap. That throws a wrench in the works. I’m still processing it all. Seriously, I’m not posting this for sympathy cyber hugs! There are people right here on my f-list battling much more debilitating and awful illnesses than my chronic, not life threatening, intestinal issue. And every day I am more amazed by their spirit and determination and good nature in the face of pain and just rotten luck!

I left the doctor’s office feeling kinda sorry for myself. I thought about just going home. I am worried about some things. The financial strain. Insurance is such a nebulous, unpredictable and unreliable thing. And also the physical toll this will take on my body in the future. But one thing the doctor did say to me was that my otherwise good health was a big benefit to me. I have nothing else wrong with me at all. So I went to the gym and I did a pretty decent work out. While I was sweating away and listening to my iPod, I was thinking about how I didn’t want to be a sick, weak person who had to be handled so carefully and who limited their life. I don’t want to look or act or BE sick. So I decided I’m not going to be. Oh I’ll take care of myself and do everything the doctor thinks I should. But I’ve decided that for a good 98% of the time, I’m not going to be “that lady with Crohns.” I’m going to be SnoKat, the housewife, the writer, the friend, the daughter, the hard worker, the baker, the gardening, the animal lover, the doer, the goer, the Alan-fan-supreme and Harry Potter worshiper! And I’m going to like myself a little bit better for it too.

Lots of thoughts come to mind. “Put on your big girl pants and deal with it,” is appropriate. But also this song came on my iPod and it really struck me. I’ve heard it a bizillion times, but this time I think I actually listened to it. So, Move Along now… nothing else to see.



P.S. You know I’ll take my happy news where I can find it. I weighed at the doctors office and found I’m down by about 7-8 lbs! Hell of a diet plan. But I’m going to go dig around in that box of clothes I was going to give away and see if anything I thought was a lost hope of ever fitting me again is now going back on the hanger!!

Comments

[info]anglophilic wrote:
May. 15th, 2008 11:46 pm (UTC)
Good attitude not letting it get you down. :-) Why are medical and car issues always so expensive?
[info]snokat wrote:
May. 16th, 2008 12:14 am (UTC)
Because without our health or our cars we are really fucked and they know it!!!
[info]desdiamonds wrote:
May. 15th, 2008 11:54 pm (UTC)
*hugs*

GO WOMAN GO!! lol. Keep being your fantastic self. You are a good role model for not letting this stuff get you down :)
[info]catsplay wrote:
May. 16th, 2008 12:20 am (UTC)
The mind is a powerful thing, and your positive attitude will reap positive benefits. Sorry to hear it's a bit more serious than expected, but as the others said, your positive attitude will make all the difference!
[info]reallyginnyf wrote:
May. 16th, 2008 01:05 am (UTC)
God, sno, do you know how much I love you? What a fantastic and inspirational attitude you have. I know you didn't post for cyber-hugs but you're getting them anyway...

*HUGS*

...plus my offer as a willing listener when you need to vent, even though we already talk every day (and sometimes twice a day).
[info]snokat wrote:
May. 16th, 2008 01:37 am (UTC)
AWwhh, Gingers. I'll take hugs any time! *takes*

I know you're always there. I appreciate the great sounding board you are!
[info]snoopylover1967 wrote:
May. 16th, 2008 01:11 am (UTC)
Cats is right, in that there are many studies that prove a positive attitude can physically assist the body. I admire you, and the fact that you have not allowed a rotten stroke of luck be the end of the you that your family and friends love and enjoy.
[info]monicarnsg wrote:
May. 16th, 2008 02:09 am (UTC)
I don't have a lot of experience with Crohns disease, personally, but I know it can be trying. These two links helped me brush up. I thought that they might be helpful.
http://www.webmd.com/ibd-crohns-disease/crohns-disease/default.htm
http://www.webmd.com/ibd-crohns-disease/crohns-disease/news/20080221/crohns-disease-immune-therapy-first
[info]snokat wrote:
May. 16th, 2008 02:41 am (UTC)
I have been doing some reading. And frankly you can scare yourself shitless with some of the stuff out there!! There is a web site for Crohns/colitus sufferes that is pretty good. Wikipedia was WAY scary!
[info]monicarnsg wrote:
May. 16th, 2008 02:48 am (UTC)
I can imagine. I'm sorry, it wasn't me intention to scare you, just to inform from the medical standpoint, not a blog (or one person's opinion) point of view. The second link had different types of treatment I thought might be useful, as it list not just one form of treatment, or why MD's pick one form of treatment over another.
[info]ishakpasha wrote:
May. 16th, 2008 04:43 am (UTC)
I don't want to offer sympathetic cyber hugs. I just want to say that I find your words very encouraging. The power of positive thinking can change and improve your life. Blessings Snokat.
[info]kristine00 wrote:
May. 16th, 2008 05:16 am (UTC)
You have got the right attitude and the amazing thing is that you were able to find it soooo quickly! Good luck to you and carry on!
[info]ispellit wrote:
May. 16th, 2008 07:21 am (UTC)
Your Indian name from now on shall be: "She who badly suffers but stands strong with a smile" ! I second your attitude, Sno!

My sister, who's hypochoncric, once said to me: "I cannot understand how you're dealing with all your badly aching diseases as if they were nothing." "I don't, because they are not nothing, actually. But well, what does moaning about a chronical disease change to the better?", I replied. "I have exactly two possiblities: giving up my life or dealing with it the best way I can, since I won't get rid of it anyway."

Just like you I admire those who are suffering from life threatening diseases and still fight and make the best of their life.

I wish you the best, girl!

Ps.: Congrats on fitting into those clothes again! :) I wish I would.
[info]captivebird wrote:
May. 16th, 2008 08:54 am (UTC)
Well said and well done indeed. Facing a disease with a hard Snape-like stare shows real courage. Those Gryffindor boys you so admire must be very proud of you!
[info]grigorisgirl wrote:
May. 16th, 2008 12:44 pm (UTC)
Move along is all you can do, good sentiment.
We complain about our health service here but thank god we don't have to worry about finding money when we are ill over here (unless your local hospital say they can't afford the special drugs for rare illnesses:( )
Remember, just keep smiling because it really pisses people off!
[info]unholypassion wrote:
May. 16th, 2008 01:02 pm (UTC)
Oh no, I'm so sorry to hear this. I don't know a whole lot about Crohn's, other than my mom's husband has it, and had surgery for it last year.
[info]portiareigns wrote:
May. 16th, 2008 01:29 pm (UTC)
I'm glad that you like your doctor. It's important, especially for a long haul treatment regimen. You are strong and otherwise healthy. You are not the lady with Crohn's. You are the pretty redhead with peaches and cream skin, who writes well and has a strong spirit.
[info]snokat wrote:
May. 16th, 2008 06:15 pm (UTC)
Thanks for the well wishes everyone. Okay, I need to STOP reading all the "help/support" sites out there because they are just depressing the hell out of me!!!! I'm going to go to my happy place for a while!! You can find me in Snape's dungeon serving a grueling detention underneath his desk.
[info]doglurker wrote:
May. 16th, 2008 09:23 pm (UTC)
Keep up the fantastic spirit! This does not have to define you. It's hard - I can only imagine - but you're handling this so well. And, who knows? Maybe this will inspire some wonderful story inside you, that you never would have found without this challenge - Jeez! I sound so Californian sometimes!

[info]nahima_snape wrote:
May. 16th, 2008 10:29 pm (UTC)
All will go well...
You rock, girl!
[info]aabshier wrote:
May. 17th, 2008 12:07 am (UTC)
I'm not worthy! I'm not worthy!
You know, I think I'll spend a lifetime working to deserve you. It will be a labor of love!
[info]snokat wrote:
May. 17th, 2008 12:08 am (UTC)
Re: I'm not worthy! I'm not worthy!
Yes, you are worthy! In fact you did something really awful in your past life to get stuck with me! It's a wonder the gods didn't just turn you into a worm this time around! hahahah
[info]annie_from_aust wrote:
May. 17th, 2008 07:44 am (UTC)
I love your positive attitude.
Koala hugs !
[info]deeindiana wrote:
May. 17th, 2008 02:26 pm (UTC)
You're going to get a hug whether you want one or not! *BIG HUG* I'm so sorry that you have to go thru this, Sno...you have my good thoughts and prayers. Your positive attitude will help you tremendously. But don't forget to let the people who love you help too.
(Anonymous) wrote:
May. 20th, 2008 02:47 am (UTC)
Anonymous is my only option?
Hi there. Glad to hear you're doing well...and glad to read you're taking it all in stride.

I'm the wife of one of Andy's OOTer pals. I read about your hospital stay and wanted to pass along my well wishes, fellow Crohner. Thankfully mine has always been a mild case but I suppose that could change on a dime. Your outlook is spectacular and if things ever go south for me with it I'm coming back to this blog post for a shot in the arm.

Good luck with all your upcoming treatments. I'm sure all will go well.

Take care,
(if I ever get a livejournal name it will be) blather.wince.repeat :)